An article reviewing lessons learned
Read about the experience of establishing a patient advisory group and engaging this group of individuals in the development of European guidelines, an international registry and a series of research studies.
This open access article includes perspectives from EMBARC (the European Multicentre Bronchiectasis Audit and Research Collaboration) and ELF (European Lung Foundation) who worked together to facilitate patient involvement; and also perspectives from the patients involved.
The article reviews lessons learned and aims to provide guidance for future ERS (European Respiratory Society) guideline working groups that are considering patient involvement.
Read the article: Patient participation in ERS guidelines and research projects: the EMBARC experience, Breathe, September 2017