The following activities helped us to identify what matters most to patients and caregivers in lung cancer treatment and care.
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A patient-centred review of published medical research and organisational literature about lung cancer formed the basis for evidence-based planning discussions and consultation throughout the project.
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We brought together individuals with experience of lung cancer from across Europe to form a patient advisory group to help guide the direction of the project and to contribute their experiences and views. They are pictured in the main section below.
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We consulted with 400 individuals through the following activities:
- Workshops
Patients, carers and healthcare professionals came together at workshops in Brussels and Amsterdam to share experiences and discuss priorities for lung cancer treatment and care. - Questionnaires
An online questionnaire in 15 languages was disseminated to patients and caregivers in Europe to test the views emerging from the workshops with a wider group. Aquestionnaire was also circulated to lung cancer patient organisations to gather their views.
- Workshops
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The project was supported by, and worked closely with, members of the ERS lung cancer working group.
The patient advisory group joined with members of this group at a workshop at the ERS International Congress 2015 in Amsterdam to debate multidisciplinary team working in lung cancer treatment and care.
A joint patient-professional statement will be published to offer recommendations for good practice in this area.
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We have developed this website to:
- signpost to quality lung cancer information in Europe for individuals who receive a diagnosis and their caregivers
- link to support organisations and resources that patients and caregivers find useful in a range of countries and languages
- raise awareness of the priorities for individuals with experience of lung cancer
- highlight the latest research findings for lung cancer
