Have your say on the future of rare disease

If you are affected by a rare disease or caring for someone affected by a rare disease then please complete the Rare Barometer survey on the future of rare diseases – available in 23 languages.

COVID-19 your questions answered

ELF consults with infectious diseases experts from the European Respiratory Society to answer your questions

New factsheet on ChILD

Coming in other languages soon!

Publications in the field of ChILD

This review highlights progress including an increase in registers

Our new website - tell us what you think!

Answer 3 quick questions and help us improve the website