The following activities helped us to identify what matters most to patients and caregivers in lung cancer treatment and care.
A patient-centred review of published medical research and organisational literature about lung cancer formed the basis for evidence-based planning discussions and consultation throughout the project.
We brought together individuals with experience of lung cancer from across Europe to form a patient advisory group to help guide the direction of the project and to contribute their experiences and views. They are pictured in the main section below.
We consulted with 400 individuals through the following activities:
Patients, carers and healthcare professionals came together at workshops in Brussels and Amsterdam to share experiences and discuss priorities for lung cancer treatment and care.
An online questionnaire in 15 languages was disseminated to patients and caregivers in Europe to test the views emerging from the workshops with a wider group. Aquestionnaire was also circulated to lung cancer patient organisations to gather their views.
The project was supported by, and worked closely with, members of the ERS lung cancer working group.
The patient advisory group joined with members of this group at a workshop at the ERS International Congress 2015 in Amsterdam to debate multidisciplinary team working in lung cancer treatment and care.
A joint patient-professional statement will be published to offer recommendations for good practice in this area.
We have developed this website to:
- signpost to quality lung cancer information in Europe for individuals who receive a diagnosis and their caregivers
- link to support organisations and resources that patients and caregivers find useful in a range of countries and languages
- raise awareness of the priorities for individuals with experience of lung cancer
- highlight the latest research findings for lung cancer