A joint letter - Sarcoidosis: patient treatment priorities - highlights the findings of an international patient survey.
The survey asked people with sarcoidosis to rate the importance of different treatment outcomes: 1,842 people responded, with 'quality of life' and 'functionality' ranking as the two most highly-rated outcomes for treatment and care.
The letter also calls for:
- The assessment of ability to work and the provision of supportive measures.
- Clinicians to work in a multidisciplinary way to ensure a holistic approach.
- For sarcoidosis specialist centres to be established in every country.
The letter was written by the ELF sarcoidosis patient advisory group and healthcare professionals working in the field. A poster on the survey's preliminary findings was presented at ERS International Congress 2018. Download poster as a PDF.